Wesley's birthday

Saturday, March 14th is Wesley's birthday. My little bear will be 6. Can you believe it? It's hard for me to recall how much we've been through in 6 years. But it's been a lot. And here we are still happy, still blessed, and still going strong. It's been five years since we've been introduced to FA. FA has changed us in so many ways. Mostly for the positive at this point. But it has also broken our hearts many times. It has produced compassion and understanding. Heartache and tears. Forever friendships and bonds that will withstand all. I don't know how we got here, or where we are going but we are reluctantly going along for this ride. Smiling and laughing as we go. Crying when we hit those bumps along the way. I hope the road will smooth until we reach the end. But is it ever really the end? Or do we just get off at the final exit that takes us to a beautiful eternity? Yeah, the road never ends.

Please take some time to wish Wesley a Happy Birthday. The other day he asked about a necklace I was wearing that has two four-fingered hands on it representing kids with FA. He asked what Fanconi Anemia was. I told him he has Fanconi Anemia and he was confused. So funny to me because I thought he knew he had FA but I guess not. I explained to him that was why he wore a hearing aid and why his hands looked different. I reminded him of all the kids he knew that also had FA like him. And then I said that if he didn't have FA, we wouldn't get to go to Camp Sunshine and that was the deal sealer right there! He beamed and later that day he was singing some song and putting the words Fanconi Anemia to it. My little bear. I told him he steals my heart. He asked what that meant and I explained it. A few days later Quinn came downstairs and said, "Mom, you know what Wesley just said to me?" I thought oh geez, now what came out of his mouth. "He said I steal his heart." And she was beaming. Why I am so blessed is beyond me.

Hugs,
Kristin