I just posted some other pics and videos today. You have to go to "older posts" at the bottom to see them. Now it's Camp Sunshine time. So, I will tell the story of us finding out Wesley had Fanconi Anemia at the age of one. My dad called me and said he had found a camp where FA families went to once a year. I asked where it was. He said Maine. Shocked I asked where in Maine. He said Casco. A couple of towns from our house so 5 months later we were surrounded by families who had children with Fanconi Anemia just like our son. It was scary, amazing, sad, wonderful and incredible. Where else could we talk with so many people who understood, who we could ask questions, and form forever freindships? Only Camp Sunshine...1/2 hour from our house. We've met families from Argentina, Africa, Australia, Germany, UK, Cananda, Israel, all over the states...I could go on forever. So, we were hooked and look forward to this every year. This has been our 6th FA camp and we've met the most amazing families and volunteers. So these are our most recent pics.

Here is Wesley and Jasper from Australia at a BBQ we had at our house before camp.

Here are some FA kids from Maine, Australia and Tennessee.

This is at camp. It's a balloon release with the names of our loved and lost and prayers for a cure.

Wesley watching.

This is the Tennessee family that came to stay with us.

This is Violet. Her sister Emma has FA. Violet totally stole my heart and I just had to hold her every chance I got.

Here is Emma and Wesley at the party.

Some FA kids and volunteers.

Collin at the party.

Jasper, Emma and Quinny.

Sean and Quinny.

The girls at the dinner.

Quinn, Lauren, and Baylor who is doing great post transplant.

Wesley asleep with his cricket shirt from his Aussie friend, Jasper!

Wesley, Quinn and Alma from Israel.

Sharon (Israel), Brooke (Australia), Sean, Paul (Australia)

I'm trying to get a hug goodbye from Emma. Ralf (Germany) lost two of his girls to FA and is now dedicated to research to help find a cure. We all gave spit samples, mouth swabs, and Wesley gave blood all to help.

One of our favorite volunteers Katie.

Collin with some of the teens in his group. The girl next to Collin lost her sister a year ago. Her family wears pink to honor her. They are from the UK and also have another son with FA.

So, we had an amazing time again this year. We are all still recovering from late nights and early mornings but thankfully we don't have school yet. Some kids had to go back to school the next day. Ugg. That would stink.

The summer is slowly winding down. Quinn and Collin had fun at their other summer camps. I am going to be at a loss when the kids go back to school full time. Not sure where life will take me but I'm sure I will find my way. Wesley is doing well. Never realized he was technically in mild bone marrow failure but I guess with his counts, that's where he is. But doing wonderful. Sorry it took so long to update but remember there are some more pics in the previous post (you might have to click on "older posts" to see them. Thank you everyone for your love and support. Love and prayers to those in transplant right now who are fighting for life. Hugs and tears to those who have lost their children. My heart is with every one of you.

-Kristin